Please find the following links for other sites containing information about Chiari malformation and Syringomyelia:

Conquer Chiari - An American site, probably the best known in the world at the moment.

American Syringomyelia Alliance Project (ASAP) - another great American site for information.

Patient UK - A great overall view of Chiari and its variables.

World Arnold Chiari Malformation Association (WACMA) - Another great American site.

The Chiari Institute - Yes, another American Chiari related site.

Association for Spina Bifida Hydrocephalus (ASBAH) - UK association offering help and advice.

www.Chiari.co.uk - UK Forum to meet other people with Chiari and Syringomyelia. Lots of wonderful people on here at all stages of the condition, including patients, carers and parents.

Chiari.org - A great site written by a friend of mine who has gone through Chiari treatment and much more. Alison designed and built this site for her University Degree and it offers a personal insight into her world and shows her passion for helping others.

But You Don't Look Sick - The home of "The Spoon Theory" a brilliant story by Christine Miserandino who tells us a personal story and analogy of what it is like to live with sickness or disability. I have used this story many times to explain to family and friends

Wisconsin Chiari Centre - Tonnes of pictures, vids and information regarding Chiari and Syringomyelia!

Wrong Diagnosis.com - Info on Chiari

Spine Universe.com - Some interesting point on Chiari and Syringomyelia from the USA

I will add others as I come across them and remember them.

Other Links that you might find interesting:

Ever tried to explain to someone else what its like r how you feel with Chiari?
How I explained it to my young kids
Forum – Somewhere I can meet other people the same as me