Hi

Thank you for popping over from the Chiari Forums.

If you are a forum regular then please accept my sincere thanks for supporting the forum and the blog, without you guys this would not be the success that it is today.

If you are new to both or either, then welcome. I am sure you will soon find that you have found the only place that you need to get all the information and support that you need. Please consider signing up to help or contribute, comment or just to make friends with the wonderful people that are involved in both. Most people do get more out of both sites by becoming a member.

If you would prefer not to, then that's OK too! We really do hope that you find answers, support, information and above all feel like you are not alone and that there are people in the UK and beyond just like you. People who can help in many ways.

A little about me.

The sites are not just for people with Chiari / Syringomyelia, they exist for the benefit of carers and friends too. As a Chiarian, I am aware that this condition not only affects me, but those around me.

Remember, that none of us are medically trained, although we do have a lot of personal experience at all kinds of levels. The information that we provide and discuss is not meant to replace anything that your medical professional provides for you. Although at times it may give you ideas and information to take back to the less "aware" in the medical field about the condition.

We are people that you can talk openly and honestly to. Many people just want to come over and rant! That's cool! Most of us have done it before and probably will in the future........ we often find ourselves frustrated with the whole thing as there aren't enough professionals out there who understand properly, nor is there enough free and available information out there either. No wonder that some of us get frustrated.

Hopefully you have found a place , just like the rest of us, where we realised we could not do without it.

Personally, the forum provided me with boundless support and advice - I would NOT be here today in the same state if I had not found those people.

It has driven me to publish my own blog, to try and help others - it's also a rather cathartic experience for me too - it has helped me come to terms with it all and to think it through clearly.

Enough of the ramble.

Please either click through to the Home Page by finding the button, or click on the graphic at the top.

I have also added a few links at the bottom to help you to get started.

How to Talk to and Treat Someone With Chiari

A Quick "What is Chiari and Syringomyelia?"

Brain Fog? Know What I Mean?

Fibromyalgia - Do you suffer? How do you know?

Funding for Chiari Blog